EURORDIS PHOTO AWARD
The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond.
The contest is open to all nationalities, ages, and diseases. Every year, hundreds of people from all around the world submit their photos, each reflecting the drive of people living with a rare disease.
PHOTO AWARD 2022 FINALISTS
Submissions for the Photo Award 2022 are now closed. Seven finalists have been selected by our longtime judge and award-winning National Geographic photographer Marcus Bleasdale (more info below).
VOTE NOW for your favourite photo! The three winners will be announced during the EURORDIS Black Pearl Awards online ceremony on Tuesday, 8th February (18:00-19:30 CET). Register here for free!
Disease: Congenital Melanocytic Nevus
Photographer: Lucía Lamata
Caption: Throughout my life I have often been compared with Dalmatians because of my skin condition, so I took a photo with one of them!
Disease: Trisomy 9 Mosaic
Photographer: Emiliano Cribari
Caption: Trisomy 9 Mosaic is a rare chromosomal disorder for which the chromosome 9 appears 3 times (trisomy) rather than 2. The term ‘mosaic’ indicates that the chromosome is not present in all the cells but only in some of them. Associated symptoms and results may change substantially according to the percentage of cells with the extra chromosome. However, the common features include slow growth before birth, mental retardation, heart structural malformations and distinctive features of the skull and face like a sloping forehead, and malformed ears. Individuals with trisomy 9 mosaicism can vary very much one from another. He is Federico: six years old, blind. He speaks through body language, just like a dancer.
C) Girlfriends for Life
Photographer: Josef Hinterleitner
Caption: Despite their different religions, cultures and handicaps, these two young women are best friends and enjoy life to the full.
D) I climbed Mount Kosciuszko!
Disease: ADCY5-related dyskinesia
Photographer: Angelina Canturi
Caption: Francesca at 14 years old with the support of family and friends climbed Mount Kosciuszko, tallest mountain in Australia at 2,228 meters above sea level.
E) Jazz the two of us
Disease: Metachromatic Leukodystrophy
Photographer: Rafal Mroziński
Caption: This photo was taken during one of the outdoor music concerts and illustrates our typical way of experiencing music, mainly jazz concerts, by Borys and myself. Unexpectedly jazz became our shared passion and emotional glue building up strong fundament of Father and Son’s love and joy.
F) Smiling underwater
Disease: Angelman Syndrome
Photographer: Catarina Costa Duarte
Caption: Pedro is an ANGEL and is always smiling. Pedro loves water and even underwater he keeps his contagious smiles.
G) The world of hope
Disease: Hereditary hypophosphatemic rickets
Photographer: Pranab Basak
Caption: This boy has been affected by Hereditary hypophosphatemic ricket since his early childhood. Still he is happy with his elder sister and his world of hope.
Thank you all for the touching and inspiring photos we have received!
Marcus Bleasdale is a talented documentary photographer and photojournalist who has been dedicated to advocacy and human rights for over fifteen years. His work on human rights and conflict during his role as a photographer for National Geographic Magazine has helped to educate and advise corporations and policy makers around the world. Marcus has also partnered with various international advocacy groups, including the Human Rights Watch.
In 2002, his first book “One Hundred Years of Darkness” was published, soon followed by “The Rape of a Nation” (2009) and “The Unravelling” (2015). Appearing in the New Yorker, The New York Times, The Sunday Times Magazine and TIME Magazine to name a few, he has been the recipient of numerous prestigious awards including the UNICEF Photographer of the Year Award (2004), the Anthropographia Award for Photography and Human Rights (2010) and the Amnesty International Award (2015).
entries from previous years
Check out more inspiring photos from the last few years:
See entries from the 2021 EURORDIS Photo Award
See entries from the 2020 EURORDIS Photo Award
See entries from the 2019 EURORDIS Photo Award
See entries from the 2018 EURORDIS Photo Award