Lifetime Achievement Award 2021
Members Award 2021
Policy Maker Award 2021
European Leadership Award 2021
Young Patient Advocate Award 2021
Scientific Award 2021
Volunteer Award 2021
Visual and Audio Media Award 2021
Company Award for Patient Engagement 2021
Company Award for Innovation 2021
Company Award for Health Technology 2021
Photo Award 2021
Written Media Award 2021
EURORDIS Members Award 2020
Holistic Care Award 2020
Written Media Award 2020
EURORDIS Photo Award 2020
Company Award for Health Technology 2020
Company Award for Innovation 2020
Company Award for Patient Engagement 2020
Visual and Audio Media Award 2020
EURORDIS Black Pearl Awards EURORDIS Volunteer Award 2020
EURORDIS Black Pearl Awards Scientific Award 2020
Young Patient Advocate Award 2020
EURORDIS Black Pearl Awards Leadership Award 2020
EURORDIS Policy Maker Award 2020
🗣Coming soon: New #RareBarometer survey on the journey of rare disease patients to diagnosis!
We will soon share a questionnaire available in 25 languages for anyone living with a rare disease anywhere in the world 🌎 Register now: http://l.eurordis.org/ueYj
Today and tomorrow, EpiCARE will follow the 32nd @eurordis workshop to discuss the impact of the EU regulatory science strategy to 2025.
We are looking forward to discussing elements of the EMA task forces, and their impact for developers of #raredisease treatments.
"Too many people with a rare disease are still facing unmet needs and inequalities in accessing diagnosis, treatments and care"
Read our #FutureofRARE article on why it's time for action now from Europe on rare diseases: http://l.eurordis.org/jeAc
@RareRevolutionM
Reaching a diagnosis is a challenging journey for rare disease patients, their families and society.
The @Screen4Care aims to shorten the time to diagnosis and treatment for patients with rare diseases, and EURORDIS is proud to be a project's partner!
http://l.eurordis.org/beS2
The voices of patients and citizens must be heard at the EU level!
The lack of funding will significantly hamper NGOs' contribution to a meaningful @EU_Health Programme implementation and diminish the democratic representation of the most vulnerable in society
#SaveEUHealthNGOs
The EURORDIS Black Pearl Awards🏆 give recognition to those in the rare disease community who deserve it the most.
Read the article on what receiving the Volunteer Award meant to Claudia Crocione: http://l.eurordis.org/geRr
You have time till the 10th of September to nominate your star of the #raredisease community, or enter yourself for one of the @eurordis Black Pearl Awards 2022.
#EURORDISAwards2021
https://blackpearl.eurordis.org/nominate
Find out all about the EURORDIS #BlackPearlAwards #EURORDISAwards2021 #RareDisease https://blackpearl.eurordis.org/about/ via @EURORDIS
Do you know someone who has contributed to the rare disease community?
Let the world know about their achievements by entering your nomination for the #EURORDISAwards2021 NOW and help them reach new heights!
👉https://blackpearl.eurordis.org/nominate/
🏆 Congratulazioni a Rachele Somaschini, campionessa italiana di rally, affetta da #fibrosicistica. Grazie al suo progetto #CorrerePerUnRespiro ha vinto il premio “Young Patient Award”.
#EURORDISAwards2021 #InternationalWomensDay
https://bit.ly/3cbe3xJ
Alumni career news: Cambridge Executive MBA alumnus Stefano De Socio Lardani and his team’s work at biopharmaceutical giant Takeda recognised by @eurordis award.
Read more: http://orlo.uk/gPWDM
#EURORDISAwards2021
Durante más de 80 años, #Takeda ha trabajado para los pacientes con #EnfermedadesRaras con el objetivo de encontrar soluciones a los retos de salud a los que se enfrentan día a día. ¡Gracias, @eurordis por este reconocimiento! #EURORDISAwards2021
