EURORDIS Members Award 2020
Holistic Care Award 2020
Written Media Award 2020
EURORDIS Photo Award 2020
Company Award for Health Technology 2020
Company Award for Innovation 2020
Company Award for Patient Engagement 2020
Visual and Audio Media Award 2020
EURORDIS Black Pearl Awards EURORDIS Volunteer Award 2020
EURORDIS Black Pearl Awards Scientific Award 2020
Young Patient Advocate Award 2020
EURORDIS Black Pearl Awards Leadership Award 2020
EURORDIS Policy Maker Award 2020
Do you know how many #raredisease appointments were cancelled or postponed because of #COVID19?*
🧑🦽 80% of rehabilitation therapies
💉 6 in 10 surgeries or transplants
🏥 70% of appointments
👉https://www.eurordis.org/publication/how-has-covid-19-impacted-people-rare-diseases
*Of 83% people whose care was disrupted
This week is the last week of our @imi_paradigm project!
Over the last 3 years we have developed tools and recommendations to make patient engagement easier for all.
Congratulations to all the people involved! 🥳
Download the tools here 👉 https://imi-paradigm.eu/petoolbox/
Last chance to join the LIVE launch of the #RareImpact report!
What are the challenges and solutions for improving patient access to advanced medicinal products at the European level?
TODAY from 14:00 to 16:00, CET.
👉Register here: https://us02web.zoom.us/webinar/register/WN_0THyzz6gRD-tH6eT420XEA
Fantastic! @EMA_News listened to our call with @eupatientsforum & have organised a public stakeholder meeting on the development & authorisation of safe & effective #COVID19vaccines in the EU. This event is important for ALL patients!
Read our letter 📝: http://download2.eurordis.org/EURORDIS_EPF_joint_letter.pdf
🍀 ¡Envía tu foto y participa en el @eurordis Photo Award 2021!
Este año, se quiere reflejar la realidad de las personas que conviven con alguna enfermedad poco frecuente durante la pandemia de la #COVID19.
🔸 Conoce cómo puedes participar: https://bit.ly/3nDVAhz
What are the challenges and solutions for improving patient access to advanced medicinal products at the European level? 🤔
🔴Follow LIVE the launch of the #RareImpact report!
📅 Monday 23 November from 14:00 to 16:00, CET.
👉 Register here: https://us02web.zoom.us/webinar/register/WN_0THyzz6gRD-tH6eT420XEA
Do you have a photo that shows what it’s like to live with a #raredisease? Submissions are NOW open for the @eurordis Photo Award 2021!
You can submit your photos here: https://blackpearl.eurordis.org/photo-award/
#EURORDISAwards2021 #RareDiseaseDay
Do you have a photo that shows what it’s like to live with a #raredisease? Submissions are NOW open for the EURORDIS Photo Award 2021!
📸 Submit your photos: https://blackpearl.eurordis.org/photo-award/
#EURORDISAwards2021 #RareDiseaseDay
Have you nominated your #raredisease star? Submit your nomination today by 22:59 UK time.
http://ow.ly/lRMA50BFh4Y
#undiagnosed #EURORDISawards2021
A brilliant opportunity to celebrate people with rare diseases and those who make a difference to their lives. #EURORDISawards2021 #raredisease @eurordis
Nominate your ⭐️ now! #EURORDISawards2021
⏰ Only 1 day left to submit your nomination!
(Deadline: Wednesday 23:59h CEST)
Last opportunity to let us know who is your rare disease star 👇 https://blackpearl.eurordis.org/nominate/ #EURORDISawards2021
