Recognising the outstanding achievements and exceptional work of people making a difference for the rare disease community.

Taking place in February to mark the occasion of Rare Disease Day, the EURORDIS Black Pearl Awards celebrate the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives.

The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and dedication in their daily lives.

Photo award 2022 now open!

The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease and to share your story with the rare disease community and beyond.

The contest is open to all nationalities, ages, and diseases. Every year, hundreds of people from all around the world submit their photos, don't wait any longer and join them.

Three amazing prizes are waiting for you!

The EURORDIS Black Pearl Awards takes place in February, marking Rare Disease Day.

Rare Disease Day is the international awareness-raising campaign for rare diseases, coordinated by EURORDIS.

Thousands of events take place in over 100 countries and regions, uniting millions of people living with a rare disease worldwide.