EURORDIS Black Pearl Awards

Recognising the outstanding achievements and exceptional work of people making a difference for the rare disease community.

Taking place in February to mark the occasion of Rare Disease Day, the EURORDIS Black Pearl Awards celebrate the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives.

The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and dedication in their daily lives.


The 12th edition of the Awards took place on Tuesday, 21st February 2023.

The event brought together hundreds of persons living with a rare disease, patient advocates, policy makers, including representatives from the European Parliament and Commission, scientists, healthcare professionals, industry representatives, and more from all around the world.



Nominations received


Total Participants




Award Winners

When are the EURORDIS Black Pearl AwardS?

The EURORDIS Black Pearl Awards takes place in February, marking Rare Disease Day.

Rare Disease Day is the international awareness-raising campaign for rare diseases, coordinated by EURORDIS.

Thousands of events take place in over 100 countries and regions, uniting millions of people living with a rare disease worldwide.

Follow us on twitter

With Thanks to our 2023 Donors