Lifetime Achievement Award 2021
Members Award 2021
Policy Maker Award 2021
European Leadership Award 2021
Young Patient Advocate Award 2021
Scientific Award 2021
Volunteer Award 2021
Visual and Audio Media Award 2021
Company Award for Patient Engagement 2021
Company Award for Innovation 2021
Company Award for Health Technology 2021
Photo Award 2021
Written Media Award 2021
EURORDIS Members Award 2020
Holistic Care Award 2020
Written Media Award 2020
EURORDIS Photo Award 2020
Company Award for Health Technology 2020
Company Award for Innovation 2020
Company Award for Patient Engagement 2020
Visual and Audio Media Award 2020
EURORDIS Black Pearl Awards EURORDIS Volunteer Award 2020
EURORDIS Black Pearl Awards Scientific Award 2020
Young Patient Advocate Award 2020
EURORDIS Black Pearl Awards Leadership Award 2020
EURORDIS Policy Maker Award 2020
828 people have given their reason for European action on rare diseases. Will you help us get 172 more?
When we get together, our voice is strong enough to bring about positive change in the life of everyone living with a #raredisease in Europe. 👉https://action.eurordis.org/
Our wish for this week? The #HTARegulation approved!💪
Today might be a milestone towards European cooperation on HTA, for which we all have been waiting for so long!
📣EURORDIS joins the call on @Europarl_EN and @2021PortugalEU to finalise the HTA Regulation!
This week 26 patient advocates and 7 researchers from 19 countries have joined the #EURORDIS Summer School to become experts in medicines research and development!🔬
Together we can make a difference! 💪 http://l.eurordis.org/summerschool
The intensive training of this year's #EURORDISSummerSchool just started! Here's what the #RareDisease patient advocates & researchers attending told us about their 24h+ pre-training 💪(webinars, e-learning courses): informative, interesting, comprehensive, inspiring & much more
Why do we need European action on rare diseases?
🌍Updated European legislation
🛑to stop people losing their lives too young from rare diseases,
📈improve their quality of life,
🏆and position Europe as a global leader in rare disease innovation
👉https://www.eurordis.org/30millionreasons
We’re hiring a Governance Manager to join our team in Paris.
If you are motivated by NGO work and have a firm grasp of governance & organisational management, we’d like to talk to you!
Apply before 2 July 2021: https://www.eurordis.org/content/job-offer
🏆 Congratulazioni a Rachele Somaschini, campionessa italiana di rally, affetta da #fibrosicistica. Grazie al suo progetto #CorrerePerUnRespiro ha vinto il premio “Young Patient Award”.
#EURORDISAwards2021 #InternationalWomensDay
https://bit.ly/3cbe3xJ
Alumni career news: Cambridge Executive MBA alumnus Stefano De Socio Lardani and his team’s work at biopharmaceutical giant Takeda recognised by @eurordis award.
Read more: http://orlo.uk/gPWDM
#EURORDISAwards2021
Durante más de 80 años, #Takeda ha trabajado para los pacientes con #EnfermedadesRaras con el objetivo de encontrar soluciones a los retos de salud a los que se enfrentan día a día. ¡Gracias, @eurordis por este reconocimiento! #EURORDISAwards2021
🇸🇰 photograph©️Pavol Kulkovský is the winner of the #EURORDISAwards2021 capturing a true ❤️ in this beautiful 📸, full of fondness & devotion 👏
Congratulaitons to Milan Macek Jr, our Orphanet-Czechia coordinator for his #EURORDISAwards2021 Lifetime achievement award! Milan is a tireless member of the Orphanet family and we send our warm congratulations!
🗞️The #rarediseaseday issue of OrphaNews is out now with highlights from Rare Disease Week, including the #EURORDISAwards2021 and @rare2030 Final Policy Event http://international.orphanews.org/newsletter-en/editorial/nl/en20210214.html#or_editorial-42698
