EURORDIS Black Pearl Awards Rare Disease

The eleventh edition of the Awards will take place online on TUESDAY, 8th FEBRUARY 2022 from 18:00 until 19:30 CET and will bring together persons living with a rare disease, patient advocates, policy makers, scientists, healthcare professionals, industry representatives, and more.

Hosted every February to coincide with Rare Disease Day, the EURORDIS Black Pearl Awards celebrate the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives.

The black pearl symbolises those unique individuals, organisations, and companies who demonstrate an incredible combination of hard work and dedication in their daily lives.

1720

Nominations received

2073

Total Participants

Countries

Award Winners

Lifetime Achievement Award 2021

Lifetime Achievement Award For an individual who has manifested a lifelong dedication to addressing the needs of people living with a...

Members Award 2021

For a EURORDIS member patient organisation demonstrating innovative methods in patient support or advocacy. 2021 Awardee: AKU Society The EURORDIS Member...

Policy Maker Award 2021

For a policy maker whose dedication and commitment has made a significant difference to the rare disease community. The award...

European Leadership Award 2021

For an individual who has shown remarkable leadership in the field of rare diseases at a European level. Awardees advocate...

Young Patient Advocate Award 2021

Young Patient Advocate Award For a young, outstanding individual (of age 30 or under) who actively contributes to raising awareness...

Scientific Award 2021

For a distinguished researcher whose career represents a rare combination of scientific excellence and support for the patient community. The...

Volunteer Award 2021

Up to two EURORDIS Volunteer Awards will be presented in 2022 to individuals who have made an outstanding contribution to...

Visual and Audio Media Award 2021

Visual and Audio Media Award For the creator (or creative team) of visual or audio media that have raised awareness...

Company Award for Patient Engagement 2021

Company Award for Patient Engagement For a company that demonstrates long-term commitment in its collaboration with rare disease patients, consulting with them...

Company Award for Innovation 2021

Company Award for Innovation For a pioneering company using innovative methods to develop treatments for rare diseases. The winner is selected on...

Company Award for Health Technology 2021

Company Award for Health Technology For any company working in the field of technology developing medical devices, IT platforms, health...

Photo Award 2021

EURORDIS Photo Award 2021 The EURORDIS Photo Award is an opportunity to visually express what it means to live with...

Written Media Award 2021

Written Media Award For the author of a text – such as a newspaper or magazine article, book, or blog...

EURORDIS Members Award 2020

For a EURORDIS member patient organisation demonstrating innovative methods in patient support or advocacy. 2021 Awardee: AKU Society The EURORDIS Member...

Holistic Care Award 2020

Holistic Care Award This award is presented to a team of care professionals or of organisations that provide or support...

Written Media Award 2020

Written Media Award For the author of a text, such as a newspaper or magazine article, book or blog, that...

EURORDIS Photo Award 2020

EURORDIS Photo Award 2021 The EURORDIS Photo Award is an opportunity to visually express what it means to live with...

Company Award for Health Technology 2020

Company Award for Health Technology For any company working in the field of technology developing medical devices, IT platforms, health...

Company Award for Innovation 2020

Company Award for Innovation This award is presented to a pioneering company using innovative methods to develop treatments for rare...

Company Award for Patient Engagement 2020

Company Award for Patient Engagement This award is presented to a company that demonstrates long-term commitment in their collaboration with...

Visual and Audio Media Award 2020

Visual and Audio Media Award For the creator or creative team of visual or audio media that have raised awareness...

EURORDIS Black Pearl Awards EURORDIS Volunteer Award 2020

Up to two EURORDIS Volunteer Awards will be presented in 2020 to individuals who have made an outstanding contribution to...

EURORDIS Black Pearl Awards Scientific Award 2020

For a distinguished researcher whose career represents a unique blend of scientific excellence and support of the patient community. The...

Young Patient Advocate Award 2020

Young Patient Advocate Award For a young outstanding individual (30 years old or under) who is actively contributing to raise...

EURORDIS Black Pearl Awards Leadership Award 2020

For an individual who has demonstrated remarkable leadership in the field of rare diseases at a European level. Awardees are individuals...

EURORDIS Policy Maker Award 2020

For a policy maker whose dedication and commitment has made a significant difference to the rare disease community. The award...

Lifetime Achievement Award 2021

By jms / April 23, 2021

Lifetime Achievement Award For an individual who has manifested a lifelong dedication to addressing the needs of people living with a...

Members Award 2021

By jms / April 16, 2021

For a EURORDIS member patient organisation demonstrating innovative methods in patient support or advocacy. 2021 Awardee: AKU Society The EURORDIS Member...

Policy Maker Award 2021

By jms / April 16, 2021

For a policy maker whose dedication and commitment has made a significant difference to the rare disease community. The award...

European Leadership Award 2021

By jms / April 16, 2021

For an individual who has shown remarkable leadership in the field of rare diseases at a European level. Awardees advocate...

Young Patient Advocate Award 2021

By jms / April 16, 2021

Young Patient Advocate Award For a young, outstanding individual (of age 30 or under) who actively contributes to raising awareness...

Scientific Award 2021

By jms / April 16, 2021

For a distinguished researcher whose career represents a rare combination of scientific excellence and support for the patient community. The...

Volunteer Award 2021

By jms / April 16, 2021

Up to two EURORDIS Volunteer Awards will be presented in 2022 to individuals who have made an outstanding contribution to...

Visual and Audio Media Award 2021

By jms / April 16, 2021

Visual and Audio Media Award For the creator (or creative team) of visual or audio media that have raised awareness...

Company Award for Patient Engagement 2021

By jms / April 16, 2021

Company Award for Patient Engagement For a company that demonstrates long-term commitment in its collaboration with rare disease patients, consulting with them...

Company Award for Innovation 2021

By jms / April 16, 2021

Company Award for Innovation For a pioneering company using innovative methods to develop treatments for rare diseases. The winner is selected on...

Rare Diseases EuropeFollow

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EpiCARE @EpiCARE_ERN·

22h

💚 Today is Hypothalamic Hamartomas awareness day!

👉 for more information on this rare epilepsy, check out the website of the HHH : https://www.hopeforhh.org/

#HypothalamicHamartoma #RareEpilepsy #RareDisease

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RDI @rarediseasesint·

9 Sep

The #UN must stand behind families around the world fighting for their children's right to #care #education #inclusion. Calling for every country to vote for a UN Resolution in 2021. #Resolution4Rare
@avrilbdaly @Retina_Int @eurordis @UNHumanRights @FlaminiaRdi @RareDiseases

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Rare Diseases Europe @eurordis·

15 Sep

We’ve collaborated with @MediaplanetUK on today’s Rare Diseases campaign!

Read now @yann_eurordis's article about the challenges surrounding rare diseases and how we can support the rare disease community at https://bit.ly/2UFoUvc

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Rare Diseases Europe @eurordis·

14 Sep

Arlette, mum to a son with a rare disease from Belgium, wants Europe to take action on rare diseases so that she and others can feel more supported by EU institutions.🤝

Why do you want Europe to take action? Tell us now: http://action.eurordis.org

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Retweet on Twitter Rare Diseases Europe Retweeted

RDI @rarediseasesint·

13 Sep

📢DOWNLOAD FULL INFOGRAPHIC - A Journey through Life with a #RareDisease

The impact of a rare disease is felt throughout a lifetime and by the whole family. It affects access to education & work. It demands #socialcare #equity
@eurordis @RareDiseases
https://bit.ly/InfoPLRWD

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Rare Diseases Europe @eurordis·

13 Sep

You wanted more time for nominations – we listened!
📅17 September, 18:00 CET

Time is running out to nominate your EURORDIS Black Pearl Awards 2022🏆 hero! Let’s give them the recognition & visibility their exceptional efforts deserve!

👉http://l.eurordis.org/nwD4

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#EURORDISAwards2021

MetabERN @Metab_ERN·

19 Aug

You have time till the 10th of September to nominate your star of the #raredisease community, or enter yourself for one of the @eurordis Black Pearl Awards 2022.
#EURORDISAwards2021

https://blackpearl.eurordis.org/nominate

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Rare Revolution Mag @RareRevolutionM·

30 Jul

Find out all about the EURORDIS #BlackPearlAwards #EURORDISAwards2021 #RareDisease https://blackpearl.eurordis.org/about/ via @EURORDIS

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Rare Diseases Europe @eurordis·

27 Jun

Do you know someone who has contributed to the rare disease community?

Let the world know about their achievements by entering your nomination for the #EURORDISAwards2021 NOW and help them reach new heights!

👉https://blackpearl.eurordis.org/nominate/

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OMaR Malattie Rare @OssMalattieRare·

8 Mar

🏆 Congratulazioni a Rachele Somaschini, campionessa italiana di rally, affetta da #fibrosicistica. Grazie al suo progetto #CorrerePerUnRespiro ha vinto il premio “Young Patient Award”.

#EURORDISAwards2021 #InternationalWomensDay
https://bit.ly/3cbe3xJ

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Cambridge EMBA @CambridgeEMBA·

3 Mar

Alumni career news: Cambridge Executive MBA alumnus Stefano De Socio Lardani and his team’s work at biopharmaceutical giant Takeda recognised by @eurordis award.

Read more: http://orlo.uk/gPWDM

#EURORDISAwards2021

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Takeda_ES @Takeda_ES·

2 Mar

Durante más de 80 años, #Takeda ha trabajado para los pacientes con #EnfermedadesRaras con el objetivo de encontrar soluciones a los retos de salud a los que se enfrentan día a día. ¡Gracias, @eurordis por este reconocimiento! #EURORDISAwards2021

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Recognising Outstanding

Achievements in Rare Disease

Making a Difference for

the Rare Disease Community

EURORDIS Black Pearl Awards

Nominations received

Total Participants

Countries

Award Winners

When are the EURORDIS Black Pearl AwardS?

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