EURORDIS Black Pearl Awards
Recognising the outstanding achievements and exceptional work of people making a difference for the rare disease community.
Taking place in February to mark the occasion of Rare Disease Day, the EURORDIS Black Pearl Awards celebrate the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives.
The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and dedication in their daily lives.
The eleventh edition of the Awards took place online on Tuesday, 8th February 2022 and brought together hundreds of persons living with a rare disease, patient advocates, policy makers, scientists, healthcare professionals, industry representatives, and more from all around the world.
Nominations received
Total Participants
Countries
Award Winners
Previous Recipients
Social Media Award
Lifetime Achievement Award
Members Award
Policy Maker Award
European Leadership Award
Young Patient Advocate Award
Scientific Award
Volunteer Award
Media Award
Company Award for Patient Engagement
Company Award for Innovation
Company Award for Health Technology
Photo Award
Holistic Care Award
Company Award for Innovation 2020
Company Award for Patient Engagement 2020
Visual and Audio Media Award 2020
EURORDIS Black Pearl Awards EURORDIS Volunteer Award 2020
EURORDIS Black Pearl Awards Scientific Award 2020
Young Patient Advocate Award 2020
EURORDIS Black Pearl Awards Leadership Award 2020
EURORDIS Policy Maker Award 2020
When are the EURORDIS Black Pearl AwardS?
The EURORDIS Black Pearl Awards takes place in February, marking Rare Disease Day.
Rare Disease Day is the international awareness-raising campaign for rare diseases, coordinated by EURORDIS.
Thousands of events take place in over 100 countries and regions, uniting millions of people living with a rare disease worldwide.
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I was pleased to join leading experts in #rarediseases from all over the world at #WHA75 @rarediseasesint side event. Collectively we can create the change we want to see in the lives of the 300 million people living with a rare disease globally. No one should be left behind!
🥁 Drum roll please...we would like to introduce @RareRevolutionM as a media partner for #ECRD2022!
👉 Check out their magazine's newest RARE Liver issue: https://bit.ly/RARELIVER
✅ And register for ECRD to join in on the discussion! http://l.eurordis.org/Zydv
“We need to facilitate access to expertise and access to diagnosis for the 300 million PLWRD to truly #leavenoonebehind!” RDI Executive Director, Flaminia Macchia #rarediseases #healthforall
#WHA75
👉https://bit.ly/3NvuCpf
@FlaminiaMacchia @WHO @irdirc @Fecoer
#WHA75 RDI Side-event last speech from @yann_eurordis @Eurodis 👉https://bit.ly/3NvuCpf
"We are able, as a community, to think complexity in an easier way. We create the change we want to see."
We are not invisible anymore #rarediseases🌎
@FranceONUGeneve @NORD @EU_Commission
📢 EURORDIS is #hiring!
Join the EURORDIS Open Academy team as a Training manager and make a difference by empowering patient advocates!
✅ Interested? Find out more: http://l.eurordis.org/Yyuo
🎉Introducing @OAE_RDODJ one of our media partners for #ECRD2022!
The Rare Disease and Orphan Drugs Journal reports on advances in research within the field of rare diseases.
We can't wait to see you at our conference!
✅ Join us at the ECRD: http://l.eurordis.org/cysg
With The honorary support of
