EURORDIS Black Pearl Awards

Recognising the outstanding achievements and exceptional work of people making a difference for the rare disease community.

Taking place in February to mark the occasion of Rare Disease Day, the EURORDIS Black Pearl Awards celebrate the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives.

The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and dedication in their daily lives.

 

The eleventh edition of the Awards will take place online on TUESDAY, 8th FEBRUARY 2022 from 18:00 until 19:30 CET and will bring together persons living with a rare disease, patient advocates, policy makers, scientists, healthcare professionals, industry representatives, and more.

 

SOCIAL MEDIA AWARD 2022!

The three finalists of the brand new award category for Social Media were announced! Learn more about them and VOTE for your favourite one!

1720

Nominations received

2073

Total Participants

30

Countries

86

Award Winners

EURORDIS Black Pearl 2022 Awards Recipients

Find out all about the individuals, organisations and companies who dedicate their lives to making a difference for the rare disease community.

Previous Recipients

When are the EURORDIS Black Pearl AwardS?

The EURORDIS Black Pearl Awards takes place in February, marking Rare Disease Day.

Rare Disease Day is the international awareness-raising campaign for rare diseases, coordinated by EURORDIS.

Thousands of events take place in over 100 countries and regions, uniting millions of people living with a rare disease worldwide.

Follow us on twitter

With Thanks to our 2021 Donors