Thank you to all of you who gave generously of their time, for these moments of exchange and emotions!

While ECRD draws to an end, the drive of the community for European action on rare diseases is far from over Now, let's put policy into action!
http://l.eurordis.org/DyFY

"We should not and can not compromise on the future of our young generation. We need to take action now, to ensure better management of symptoms, improve access to treatments, and guarantee a better quality of life for all", stresses Adéla Odrihocká on the last day of #ECRD2022.

As a rare cancer patient herself, Oriana de Sousa highlights the EU's added value for people with rare diseases. A coordinated, needs-led European action plan is only the way to go! #ECRD2022

How can we ensure the implementation of the Rare 2030 recommendations?

For @dani_drachmann, the key to unlocking the potential of these policy recommendations is simple - through the partnership between experts & families of those affected by a rare disease. #ERCD2022

The rare disease community is calling for a coordinated strategy on rare diseases at the closing ceremony of #ECRD2022. What does this mean?

✅Harmonised standards of care
✅Improved diagnosis
✅Equitable access to treatments
✅Longer and better lives

Take action & share now!

The only way to keep the momentum is to take immediate action on rare diseases at the European level, emphasises Anna Arellanesova from the Czech National Alliance for #RareDiseases.

A common overarching strategy is crucial to bring about change in every country in Europe!