EURORDIS Black Pearl Awards
Recognising the outstanding achievements and exceptional work of people making a difference for the rare disease community.
Taking place in February to mark the occasion of Rare Disease Day, the EURORDIS Black Pearl Awards celebrate the inspirational qualities of people living with a rare disease along with those who go that extra mile to make a difference to their lives.
The black pearl symbolises these unique individuals, organisations and companies who demonstrate an incredible combination of hard work and dedication in their daily lives.
Nominations received
Total Participants
Countries
Award Winners
Members Award 2021
Policy Maker Award 2021
European Leadership Award 2021
Young Patient Advocate Award 2021
Scientific Award 2021
Volunteer Award 2021
Visual and Audio Media Award 2021
Company Award for Patient Engagement 2021
Company Award for Innovation 2021
Company Award for Health Technology 2021
Photo Award 2021
Written Media Award 2021
EURORDIS Members Award 2020
Holistic Care Award 2020
Written Media Award 2020
EURORDIS Photo Award 2020
Company Award for Health Technology 2020
Company Award for Innovation 2020
Company Award for Patient Engagement 2020
Visual and Audio Media Award 2020
EURORDIS Black Pearl Awards EURORDIS Volunteer Award 2020
EURORDIS Black Pearl Awards Scientific Award 2020
Young Patient Advocate Award 2020
EURORDIS Black Pearl Awards Leadership Award 2020
EURORDIS Policy Maker Award 2020
When are the EURORDIS Black Pearl AwardS?
The EURORDIS Black Pearl Awards takes place in February, marking Rare Disease Day.
Rare Disease Day is the international awareness-raising campaign for rare diseases, coordinated by EURORDIS.
Thousands of events take place in over 100 countries and regions, uniting millions of people living with a rare disease worldwide.



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Children living with a rare disease face a diagnostic odyssey that typically lasts 5 years or longer & entails seeing a multi-disciplinary group of experts.
We must provide immediate and long-term solutions to newborns affected by a rare disease. How? 👉https://www.globalrarediseasecommission.com/MemberBlog/BlogPost/3
REGISTER FOR FREE NOW! 😊
🖥️ Penile Cancer: A Patient Perspective
👬 Rob Cornes, John Osborne & Kenneth Manzie
📅 4 May, 1800-1900 CEST
🔗 http://ow.ly/DHUK50Ev2B2
@OrchidCancer @Uroweb @UrowebESU @eurordis @EJPRareDiseases @EU_Health #raredisease #PenileCancer #uroonc #Urology
DEADLINE EXTENDED! 🚨
You have until Friday afternoon to submit your good practice.
💡 Inspire other rare disease patient advocates
🥇 Get a chance to present your idea live at the Eurordis Membership Meeting #EMM2021 on 12-14 May.
👉http://l.eurordis.org/EAr
Orphan medicinal products (OMP) 💊are used for the diagnosis and treatment of rare diseases.
Join us today at 16:00 CET, to learn more about the current state of play of OMP manufacturing and ways to improve access to orphan medicines in Europe.
👉http://l.eurordis.org/fK9
Despite scientific advances👩🔬 over the years, many people with rare diseases still lack access to effective therapies.
The Revision of the EU🇪🇺 general pharmaceutical legislation is an opportunity to bring about change.
👉Read our position http://l.eurordis.org/QJP
World Orphan Drug Congress USA Virtual being held on 28 Wednesday, April has an amazing panel discussion at 15:00 CEST!
👥"Outlook on European market access strategies for rare diseases"
Register for your #free pass to listen in and ask your questions! https://rb.gy/f78fpd
🏆 Congratulazioni a Rachele Somaschini, campionessa italiana di rally, affetta da #fibrosicistica. Grazie al suo progetto #CorrerePerUnRespiro ha vinto il premio “Young Patient Award”.
#EURORDISAwards2021 #InternationalWomensDay
https://bit.ly/3cbe3xJ
Alumni career news: Cambridge Executive MBA alumnus Stefano De Socio Lardani and his team’s work at biopharmaceutical giant Takeda recognised by @eurordis award.
Read more: http://orlo.uk/gPWDM
#EURORDISAwards2021
Durante más de 80 años, #Takeda ha trabajado para los pacientes con #EnfermedadesRaras con el objetivo de encontrar soluciones a los retos de salud a los que se enfrentan día a día. ¡Gracias, @eurordis por este reconocimiento! #EURORDISAwards2021
🇸🇰 photograph©️Pavol Kulkovský is the winner of the #EURORDISAwards2021 capturing a true ❤️ in this beautiful 📸, full of fondness & devotion 👏
Congratulaitons to Milan Macek Jr, our Orphanet-Czechia coordinator for his #EURORDISAwards2021 Lifetime achievement award! Milan is a tireless member of the Orphanet family and we send our warm congratulations!
🗞️The #rarediseaseday issue of OrphaNews is out now with highlights from Rare Disease Week, including the #EURORDISAwards2021 and @rare2030 Final Policy Event http://international.orphanews.org/newsletter-en/editorial/nl/en20210214.html#or_editorial-42698