EURORDIS Members Award 2020
Holistic Care Award 2020
Written Media Award 2020
EURORDIS Photo Award 2020
Company Award for Health Technology 2020
Company Award for Innovation 2020
Company Award for Patient Engagement 2020
Visual and Audio Media Award 2020
EURORDIS Black Pearl Awards EURORDIS Volunteer Award 2020
EURORDIS Black Pearl Awards Scientific Award 2020
Do you want to reward an individual or organisation who is actively working to improve the lives of people living with rare diseases?
📣 Make your nomination for the #EURORDISAwards2021: https://blackpearl.eurordis.org/nominate/
Happy birthday to the Political Declaration Universal Health Coverage. Rare diseases are in the declaration!
Our agreement with @WHO aims to ensure #UHC means improved access to #diagnosis and care for #RareDisease.
https://www.rarediseasesinternational.org/rdi-signs-memorandum-of-understanding-with-the-world-health-organization/
@UHC2030 @ngorarediseases @eurordis
Take a moment to watch the ‘We are visible’ documentary’ about #EhlersDanlos syndrome by @KarinaSturm
➡️Watch ‘We are visible’ online:
https://vimeo.com/ondemand/wearevisible
We're looking for people affected by any of these #rarediseases that would like to connect with others living with the same condition. Interested? Send us an email at info@rareconnect.org or visit http://RareConnect.org
Share this image and help us #BreakTheIsolation!
Thanks everyone for joining and special thanks to our speakers for the interesting discussion on what it takes to realise #RealWorldEvidence’s potential.
Exciting times ahead for learning #healthcare systems 🏥
@INAMI_RIZIV
Yesterday, as part of @Rare2030, 40 #ERN coordinators, ePAGs and EC representatives discussed the future of ERNs in a EU Level Backcasting Workshop, soon to be followed by three other sessions!
Find more useful resources on our project and partners here
https://www.rare2030.eu/our-work/
Who are you nominating for this year's Black Pearl #EURORDISAwards2021! We can't wait to see who will be this year's nominations and winners.
Show your support
#RareDisease #Awards #BlackPearl
Nominations close on September 30th.
https://bit.ly/3iRy26X
Only five days left to nominate your #raredisease hero for the #EURORDISAwards2021. The Black Pearl awards are a brilliant way of honouring an individual or organisation that has made a real difference to the rare disease community. Don't miss out! 🥇 🏆
🚩Make your nomination or enter yourself to be in with a chance of winning one of the 13 EURORDIS Black Pearl Awards 2021! Down-pointing triangle https://blackpearl.eurordis.org/nominate/
🗓️Nominations are open until 30th September 2020.
#EURORDISAwards2021
An amazing initiative, and such a beautiful idea @EJPRareDiseases #EURORDISAwards2021 #RareDiseases
Do you want to reward an individual or organisation who is actively working to improve the lives of people living with rare diseases?
📣 Make your nomination for the #EURORDISAwards2021: https://blackpearl.eurordis.org/nominate/
Make your nomination or enter yourself to be in with a chance of winning one of the 13 EURORDIS Black Pearl Awards 2021! 🔽 https://blackpearl.eurordis.org/nominate/
🚨 Nominations are open until 30th September 2020.
#EURORDISAwards2021
