EURORDIS Members Award 2020
Holistic Care Award 2020
Written Media Award 2020
EURORDIS Photo Award 2020
Company Award for Health Technology 2020
Company Award for Innovation 2020
Company Award for Patient Engagement 2020
Visual and Audio Media Award 2020
EURORDIS Black Pearl Awards EURORDIS Volunteer Award 2020
EURORDIS Black Pearl Awards Scientific Award 2020
Young Patient Advocate Award 2020
EURORDIS Black Pearl Awards Leadership Award 2020
EURORDIS Policy Maker Award 2020
Does a rare skin disease affect your daily life?
Take part in the survey on the Impact of Dermatological Disease today. Together we can make a global impact on patient care!
📅 Deadline: 31/01/2021
👉http://my.crf.one/en/Public/Index/6066
📣 First webinar today 📣
#COVID19 and indications for patients with #OI. Attend the webinar (only in Italian) by clicking here: http://ernbond.eu/webinars/
Speakers:
Andrea Vianello - @Unipd_Medicina
@LucaSangiorgi1 - @IRCCS_Rizzoli
#ERNBOND
@eurordis
@rarediseaseday
🇪🇺#Europe is the fruitful oyster of Black Pearls🦪
The #BlackPearlAwards highlight some of the many unique and rare pearls advocating for the #RareDiseases European community.
@eurordis @LupusEurope @TheEDSociety @Fscleroderma @SjogrenEurope @LPCDR82 @bindweefsel @afosfolipido https://twitter.com/eurordis/status/1352182281872547840
Have you ever seen a black pearl? It is not as rare as you might have thought.
Check out our very own BlackPearl Award 2021 and discover Europe's rare talents✨ who dedicate their lives to making a difference for the #RareDisease community.
👉https://blackpearl.eurordis.org/
EURORDIS have set out 11 Key Principles for #NewbornScreening. These principles will support an harmonised European approach to NBS that will help to reduce vast inequalities across Europe. Happy for our work in the Eurordis NBS Working Group.
👉 https://www.eurordis.org/newbornscreening
I'm extremely happy to share our position paper on Newborn Screening with you!👣
Huge thanks to everyone who contributed to the development of this document!
👏👏👏 https://twitter.com/eurordis/status/1351878145943728128
You don’t have any plans for this weekend? 📆
Take a camera with you and send us a picture that captures how is daily life when you live with a rare disease! #EURORDISAwards2021
📸Send your picture: https://blackpearl.eurordis.org/photo-award/
In February 2021, we invite you to participate in our 10th annual Black Pearl Award and the #Rare2030 Final Conference.
🎉Let's celebrate our achievements and lead the way for the future of the #RareDisease community together!
👉http://eurordis.org/content/eurordis-events
#EURORDISAwards2021
📸 Do you have a photo that shows what it’s like to live with a #raredisease?
Submissions are still open for the @eurordis Photo Award 2021!
Submit your photo before 31 January 👉 http://bit.ly/33Vy2ND
@EUneurology @dystoniaeurope
#rarediseaseday #EURORDISAwards2021
EURORDIS #BlackPearlAwards Photo Award 2020 winners #RareDIsease #EURORDISAwards2021 @marcusbleasdale https://blackpearl.eurordis.org/photo-award/ via @EURORDIS
📆 2 @eurordis events in February:
➡️ #Rare2030 Final Conference on 23 February
➡️ ⭐10th annual EURORDIS Black Pearl Award ⭐ on 24 February 🥳
Sign up & get ready to mingle 👉 https://www.eurordis.org/content/eurordis-events
#EURORDISAwards2021
Ο Θάνος Παλλίδης, είναι υποψήφιος για τα Black Pearl Awards 2021,στην κατηγορία Young Patient Advocate.
Στηρίζουμε την υποψηφιότητά του με την ψήφο μας και του ευχόμαστε ολόψυχα Καλή Επιτυχία!
#EURORDISAwards2021
#rarediseases
#VoteforThanos
https://blackpearl.eurordis.org/young_patient_advocate_voting/
