Frequently Asked Questions

How do I submit a nomination?

Nominations should be completed on this website using the 'Nominate' forms. We are not able to receive nominations via email.

Who can submit a nomination?

There are no restrictions on who can submit a nomination, but we can only accept nominations in English.

Who is eligible to receive an award?

Awards are presented to patient advocates, organisations, policy makers, scientists, companies, and media for their major achievements and their outstanding commitment to the rare disease cause. View our previous awardees.

Who judges the awards?

Nominations are submitted by the general public and the winners are selected by the EURORDIS Board of Directors.

How will I know if my nomination is successful?

Winners will be informed by email. If the nominee has not received an email by mid-December 2021, please assume your nomination has not been successful for this edition of the Black Pearl Awards. We encourage you to try again next year. Who knows – next time you might be more fortunate.

Is someone more likely to receive an award if they are nominated lots of times?

No – awardees are determined by merit, not by the number of submissions.

How many times can I submit my nomination?

You can nominate as many people in as many different categories as you wish, but you may not nominate the same person more than once for any given category.

Can I nominate someone anonymously?

Yes, if you wish.

We only require your email address to send you a confirmation, but we do not use it for any future contact and it is not stored in our database.

When do submissions open for the Photo Award?

Submissions for the EURORDIS Photo Award open in November 2021.

When will the names of the awardees be announced?

The names of the awardees will be announced from January 2022.

This excludes the Photo Award, the Young Patient Advocate Award, and the Social Media Award. The winners in these categories will be voted for by the public and revealed at the Awards Ceremony in February 2022.

Are the awardees informed about who submitted a nomination for them?

No – the awardees do not know who nominated them or how many nominations they received.

How do I know if the person/organisation I have nominated will receive an award?

The recipients of the Awards will be informed directly by EURORDIS in December 2021.

The names of the awardees are made known to the general public (via EURORDIS’ eNews, Facebook, and Twitter) beginning January 2022. Stay tuned by following the hashtag #EURORDISAwards2022!

Previous Recipients

Find out all about the individuals, organisations and companies who dedicate their lives to making a difference for the rare disease community