EURORDIS Members Award 2020

ALAN Maladies Rares Luxembourg logoThe EURORDIS Members Award recognises the outstanding work of ALAN Maladies Rares Luxembourg (ALAN) in providing empowering information and support to patients living with a rare disease and their families, giving patients greater autonomy and significantly improving their quality of life.

ALAN’s specialised team provides socio-therapeutic support and psychological counselling throughout the different stages of a patient’s experience living with a rare disease, all free of charge.

Thanks to ALAN’s support, patients are able to feel empowered and to thrive, (re)constructing and redirecting their lives after diagnosis.

 

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