Getuigenverhalen

“Rare diseases are not really rare: their number is huge and is expected to grow. Italy is committed both in financing research and genetic studies and in supporting patients and their families”

H.E. Vincenzo Grassi
Ambassador of Italy in Belgium

 

“The EURORDIS Awards and Black Pearl Evening are part of a unique joint effort to bring together all stakeholders in the fight for better treatment options in rare diseases. In this event there’s the opportunity to celebrate achievements and honor the greatness of those who brought us to where we are now, making hope part of our future.”

Bruno Sepodes PharmaD, MSc, PhD
Chair COMP, University of Lisbon, Portugal

 

“C’est un honneur de pouvoir apporter mon soutien au dîner de gala d’EURORDIS pour attirer encore davantage l’attention sur les maladies rares au profit des personnes qui en sont atteintes”

H.E. Arlette Conzemius
Ambassador of Luxembourg in Belgium

Arlette Conzemius

“Every year the Black Pearl event raises awareness and celebrates the achievements of those working hard to serve people living with rare disorders. Eurordis leads the field, making this year’s celebration of EURORDIS’ two decades of achievement especially worthwhile.”

Mark Krueger, MPH
President, Mark Krueger & Associates Inc.
USA

Mark Krueger photo