Honorary Chairpersons

Jerzy Buzek

Chair of the Committee on Industry, Research & Energy at the European Parliament, former President of the European Parliament and former Prime Minister of Poland

‘The fruits of the so important research on rare diseases can bring improvement to further millions who suffer from other conditions. As chair of the EP’s ITRE committee, I cannot overestimate the need for boosting EU-wide research cooperation in this important field. In these efforts, EURORDIS has been a valued advocate and partner already for two decades.’

Giovanni La ViaGiovanni La Via

Chair of the Committee on Environment,
Public Health and Food Safety,
European Parliament, Belgium

“Rare diseases affect between 27 and 36 million people in the European Union. Patients affected by rare diseases often spend years of uncertainty waiting for their disease to be diagnosed, and for an appropriate treatment to be found. The uncertainty both of the diagnosis and the treatment represent an additional affliction that affects patient’s life and their family. This is one of the key reasons to strongly support the mission of EURORDIS to increase public awareness of rare diseases. I would really like to express my full support to promote your cause”


Martin Schulz

President, European Parliament


“I highly appreciate the work EURORDIS does to help people with rare diseases to break their social isolation and to make their lives as liveable as possible. I would really like to encourage your organisation in their work and express my full support of your activities.”

2012 & 2013

Herman van Rompuy

Former President, European Council

“I believe that goodness and love both received and given add meaning to life. We shall not forget about the European citizens living with rare diseases. This Gala Dinner is an opportunity to show solidarity and to give hope to rare disease patients.”