Jana Popova (Bulgaria)
Jana Popova of Bulgaria was the recipient of the EURORDIS Black Pearl Awards Young Patient Advocate Award 2020.
Using her skills and expertise in media and digital communications, Jana has raised awareness of issues faced by the SMA community, as well as rare diseases as a whole.
Jana's advocacy work within the EAMDA Executive Committee, the EPF Youth Group and as a volunteer for the Bulgarian Association for Neuromuscular Diseases has been instrumental in encouraging cooperation between different European patient organisations for neuromuscular disorders. This award recognises her boundless commitment to amplifying the voice of patients with neuromuscular diseases and other young patients, showing that together, patient advocacy can have a huge impact.
Find out more about the EURORDIS Black Pearl Awards Young Patient Advocate Award.