Tickets

If you are a patient advocate or a partner of this event, please contact Emilie Zingg (emilie.zingg@eurordis.org) for registration.


Why become a partner of this event?

The EURORDIS Black Pearl Awards are an opportunity for companies to:

  • Learn about the major achievements and advances for rare disease patients;
  • Help build awareness of achievements and positive changes which have been made by and for the rare disease community;
  • Network with other international stakeholders of the rare disease community in a neutral setting;
  • Gain visibility among stakeholders of the rare disease cause in Europe and around the world;
  • Support programmes that benefit rare disease patients on an international scale; and
  • Meet social responsibility goals to advance health and strengthen communities.

Support EURORDIS’ programmes:

Ticket sales and corporate donations go towards supporting EURORDIS’ activities in the following areas:

  • Increasing public awareness through information about rare diseases
  • Breaking the isolation of rare disease patients and their families;
  • Empowering leaders of rare disease communities through training, capacity-building activities and exchange to foster their research, therapeutic development and health policy activities.

Contact: 

If your company is interested in making a gift or corporate partnership for the event, please contact
Jill Bonjean, Corporate and Foundations Relations Director
EURORDIS-Rare Diseases Europe
jill.bonjean@eurordis.org or +33 1 56 53 52 68

Find out more:

EURORDIS’ International Initiatives: eurordis.org/international
Rare Disease Day: rarediseaseday.org
Rare Connect: rareconnect.org