With thanks to the corporate partners of the EURORDIS Black Pearl Awards 2018:


Ticket sales, corporate and individual donations go towards supporting EURORDIS’ activities in the following areas:

  • Increasing public awareness through information about rare diseases
  • Breaking the isolation of rare disease patients and their families;
  • Empowering leaders of rare disease communities through training, capacity-building activities and exchange to foster their research, therapeutic development and health policy activities.

Make a donation

Registration for the EURORDIS Black Pearl Awards 2019 will open in October 2018.
If you have any questions regarding the registration process, please contact:
Sharon Ashton
Events Director
EURORDIS-Rare Diseases Europe
sharon.ashton@eurordis.org or +44 77 13 03 50 14 

Why become a partner of this event?

The EURORDIS Black Pearl Awards are an opportunity for companies to:

  • Learn about the major achievements and advances for rare disease patients;
  • Help build awareness of achievements and positive changes which have been made by and for the rare disease community;
  • Network with other international stakeholders of the rare disease community in a neutral setting;
  • Gain visibility among stakeholders of the rare disease cause in Europe and around the world;
  • Support programmes that benefit rare disease patients on an international scale; and
  • Meet social responsibility goals to advance health and strengthen communities.


If your company is interested in making a gift or corporate partnership for the event, please contact
Céline Schwob, Corporate Relations Manager
EURORDIS-Rare Diseases Europe
celine.schwob@eurordis.org or +33 1 56 53 52 16