Nominations for the other EURORDIS Black Pearl Awards 2019 have now closed (see list below). Please contact Martina Bergna (firstname.lastname@example.org) with any questions you may have concerning the nominations process.
The EURORDIS Black Pearl Awards is the official EURORDIS event for Rare Disease Day and takes place in February to launch the campaign.
Who can be nominated?
Awards are presented to patient advocates, organisations, policy makers, scientists, companies and media for their major achievements and their outstanding commitment to the rare disease cause. Nominations are submitted by the general public and shortlisted by an ad hoc committee. The winners are then selected by the EURORDIS Board of Directors.
The 2019 winners will be announced later this month.
Awards categories & criteria
The EURORDIS Company Award for Innovation is presented to a pioneering company developing treatments for rare diseases.
The winner is selected using the following criteria:
- The treatments that the company is developing;
- The number of treatments that have been approved;
- The company’s policy and track record on access to drugs;
- The company’s policy and track record with patient organisations; and
- The company’s partnership with EURORDIS.
- Visual and Audio Media Award
For the creator or creative team of visual or audio media that have raised awareness of rare diseases. This could be through photography, television, radio, film, painting, online content, or another medium.
- Written Media Award
For the author of a text, such as a newspaper or magazine article, book or blog, that has brought the needs of people living with a rare disease to a wider audience.
For an individual who has demonstrated lifelong dedication to addressing the needs of people living with a rare disease. Their commitment has had a positive impact on their local/national community, as well as the rare disease community at large, with an influence on a European or international scale.