Nominations for the EURORDIS Black Pearl Awards 2019 are open until 20 August 2018. The EURORDIS Black Pearl Awards are held in celebration of Rare Disease Day. Rare Disease Day 2019 is on 28 February.
Who can be nominated?
Awards are presented to patient advocates, organisations, policy makers, scientists, companies and media for their major achievements and their outstanding commitment to the rare disease cause. Nominations are submitted by the general public and shortlisted by a nominations committee. The winners are then selected by the EURORDIS Board of Directors.
How to submit a nomination?
Anyone, from anywhere in the world, can nominate an individual or organisation for any of the award categories via the nomination form below.
Awards categories & criteria
The EURORDIS Company Award for Innovation is presented to a pioneering company developing treatments for rare diseases.
The winner is selected using the following criteria:
- The treatments that the company is developing;
- The number of treatments that have been approved;
- The company’s policy and track record on access to drugs;
- The company’s policy and track record with patient organisations; and
- The company’s partnership with EURORDIS.
- Visual and Audio Media Award
For the creator or creative team of visual or audio media that have raised awareness of rare diseases. This could be through photography, television, radio, film, painting, online content, or another medium.
- Written Media Award
For the author of a text, such as a newspaper or magazine article, book or blog, that has brought the needs of people living with a rare disease to a wider audience.
For an individual whose lifelong dedication and commitment to addressing the needs of people living with a rare disease has had a positive impact on the rare disease community.