Awards are presented to patient advocates, organisations, policy makers, scientists, companies and media for their major achievements and their outstanding commitment to the rare disease cause. Nominations are submitted by the general public and shortlisted by a nominations committee. The winners are then selected by the EURORDIS Board of Directors.
The EURORDIS Photo Award
Marcus Bleasdale is a talented documentary photographer and photojournalist who has been dedicated to advocacy and human rights for over fifteen years. His work on human rights and conflict during his role as a photographer for National Geographic Magazine has helped to educate and advise corporations and policy makers around the world. Marcus has also partnered with various international advocacy groups, including the Human Rights Watch.
In 2002, his first book “One Hundred Years of Darkness” was published, soon followed by “The Rape of a Nation” (2009) and “The Unravelling” (2015). Appearing in the New Yorker, The New York Times, The Sunday Times Magazine and TIME Magazine to name a few, he has been the recipient of numerous prestigious awards including the UNICEF Photographer of the Year Award (2004), the Anthropographia Award for Photography and Human Rights (2010), the Amnesty International Award (2015) and the Robert Capa Award (2015).
The EURORDIS Company Award for Innovation and the EURORDIS Company Award for Patient Engagement. Two separate awards – one for a pioneering company developing treatments for rare diseases, the other for their collaboration with rare disease patients.
The winner is selected using the following criteria:
- The treatments that the company is developing;
- The number of treatments that have been approved;
- The company’s policy and track record on access to drugs;
- The company’s policy and track record with patient organisations; and
- The company’s partnership with EURORDIS.
- Visual and Audio Media Award
For the creator or creative team of visual or audio media that have raised awareness of rare diseases. This could be through photography, television, radio, film, painting, online content, or another medium.
- Written Media Award
For the author of a text, such as a newspaper or magazine article, book or blog, that has brought the needs of people living with a rare disease to a wider audience.
For an individual whose lifelong dedication and commitment to addressing the needs of people living with a rare disease has had a positive impact on the rare disease community.