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2018
Serge Braun (EURORDIS written media Award)
recipients of the EURORDIS Black Pearl Awards 2018
Helene & Mikk Cederroth (EURORDIS Volunteer Award)
Chris Sotirelis (EURORDIS Volunteer Award)
Susanne Schaffert (Novartis Farma SPA) and Samit Hirawat (Norvartis Farma SPA)
Sammy Basso (EURORDIS Young Patient Advocate Award)
Nicola Bedlington, Secretary General, EPF
Nathalie Moll, EFPIA Director General
Fabian Schmidt, Orphan Europe
Eric-Emmanuel Schmitt
Nicholas McCarthy
Alba Ancochea (EURORDIS Board of Directors)
Matthew Harold (Pfizer), Nicholas McCarthy
Carrie Grant & Nicholas McCarthy
Simona Bellagambi, Carrie Grant and Elena Gentile (EURORDIS Policy Maker Award)
Georges Dassis, President EESC
Carrie Grant, Master of Ceremony
HH Princess Anne de Ligne and Raymond Azzopardi (Ambassador of Malta to Belgium)
Eric Emmanuel Schmitt and HRH Princess Astrid of Belgium
Sean Hepburn-Ferrer and Michelle Muscat
Spouse of the Prime Minister of Malta, Michelle Muscat, Terkel Andersen (President EURORDIS) & HRH Princess Astrid of Belgium
Richard Corliss (Shire), David King (Shire) and Simone Boselli (EURORDIS-Rare Diseases Europe)
Vlasta Zmazek (DEBRA/EURORDIS)
Karin & Sean Hepburn-Ferrer, Reem Boustany, Claudia Hirawat (EURORDIS’ International Circle of Ambassadors) Terkel Andersen (President EURORDIS)
Master of Ceremony, Carrie Grant & David Grant
Simone Boselli (EURORDIS-Rare Diseases Europe), Pooja Merchant (Bayer), Matthias Gottwald (Bayer)
Prof. Michele de Luca & Dr Tobias Hirsch (EURORDIS Scientific Award)
Alba Ancochea, Geske Wehr, Vlasta Zmazek, Birthe Holm (EURORDIS Board of Directors)
Nina & Tobias Hirsch (Scientific Award)
First Lady of Serbia, Tamara Vučić 2017
Patient testimony – Sarah Roarty, mother to a child with Angelman Syndrome
H.E. Eamonn Mac Aodha,Ambassador of Ireland to Belgium
H.E. Raymond Azzopardi, Ambassador of Malta to Belgium and Michelle Muscat, spouse of the Prime Minister of Malta
Michelle Davis, Moira Liljesthröm, Marie-Emmeline Lagoutte, Massimo Alfieri, Marie Fahlberg, Chris Bedford-Gay (presidents of FOP patient organisations), Stéphanie Hoffman (Clementia Pharmaceuticals)
Jill Bonjean (EURORDIS)
From left to right: Denis Costello, Matt Bolz-Johnson, Valentina Bottarelli and Simona Bellagambi (EURORDIS)
Matthew Harold (Pfizer), Michael Goettler (Pfizer), Martin Andrews (GSK – recipient of the EURORDIS Company Award), Bhash Parasuraman (Pfizer)
From left to right: Yann Le Cam (CEO EURORDIS), Anders Olauson (Lifetime Achievement Award), in front Lucia Monaco (Scientist Award), behind Julian Isla and Isabella Brambilla (Dravet, Patient Organisation Award), middle Elizabeth Vroom (volunteer Award), Terkel Andersen (president EURORDIS), Aldo Soligno (Media Award), Martin Andrews (GSK – Company Award), Dr Vytenis Andriukaitis (European Commissioner for Health and Food Safety).
Martin Andrews (GSK – recipient of the EURORDIS Company Award)
Lucia Monaco (recipient of the EURORDIS Scientist Award), Dr Vytenis Andriukaitis (European Commissioner for Health and Food Safety), Avril Daly (vice-president EURORDIS)
Elizabeth Vroom (recipient of the EURORDIS Volunteer Award) and Marlène de Wouters d’Oplinter (Master of Ceremony)
Dr Vytenis Andriukaitis (European Commissioner for Health and Food Safety)
Migdalia Denis and Juan Fuertes
Raquel Castro (EURORDIS), Dimitrios Athanasiou (patient advocate for DMD), Ketaka Rasamoely (EURORDIS)
Dragica Nikolic (First Lady of the Republic of Serbia)
Geske Wehr (EURORDIS), H.H. Princess Anne de Ligne, Yann Le Cam (CEO EURORDIS), Dragica Nikolic (First Lady of the Republic of Serbia)
Karin and Sean Hepburn-Ferrer (Rare Disease Day Ambassador)
Clara Hervas (EURORDIS), Emilie Zingg (EURORDIS) and Flaminia Macchia (Vertex Pharmaceuticals)
Cherife Levet and Stéphanie Hoffman
Avril Daly (vice-president EURORDIS) and Christina Fasser (president of Retina International)
Avril Daly (vice-president EURORDIS) and Yann Le Cam (CEO EURORDIS)
Anders Olauson (director of Agrenska Centre), Dr Vytenis Andriukaitis (European Commissioner for Health and Food Safety) and Terkel Andersen (president EURORDIS)
