The 2021 EURORDIS Member Award recipient is AKU Society for their 17 years of outstanding advocacy and research in the rare disease field. It acknowledges the organisation’s groundbreaking achievements in the rare disease community, such as DevelopAKUre and Patient-Centricleadership.
The award also recognises Nick Sireau's exceptional work, determination and contributions as an individual. Thanks to his and the AKU Society's action, a life-changing treatment is now available to patients in Europe.
Learn more about the great accomplishments and stories of the EURORDIS Black Pearl Awards Recipients from 2012 until 2020.