Gala Comité

Black Pearl Committee Co-Chairs
Princesse Anne de Ligne

Belgium

muscatMichelle Muscat

Spouse of the Prime Minister of Malta
Black Pearl Committee Vice-Chairs
Reem Boustany

International lawyer and philanthropist
Belgium

Bo Jesper Hansen

Founder of Swedish Orphan BiovitrumSweden
Black Pearl Committee Members
Ségolène AyméSégolène Aymé MD

Emeritus Director of Research,
Founder
Orphanet France

Sabine Baer

Personal Coach
Belgium

Kate Bushby MBChB, MD

Professor of Neuromuscular Genetics,
Newcastle University
UK

Nathalie Furrer

Director, Friends of Europe
Belgium

Marlene Haffner MD, MPH

CEO Haffner Associates
USA

Emil Kakkis, MD, PhD

President, EveryLife Foundation for Rare Diseases
USA
Mark Krueger, MPH

President, Mark Krueger & Associates Inc.
USA

Rodrigue Laurent

Press Officer
Belgium

Milan Macek Jr. MD, PhD

Professor, Charles University Prague
Czech Republic

Robert Narquizian

Managing Director and Founder of EC Pharma Consultingc

Stuart Peltz

Chief Executive Officer, PTC Therapeutics
USA

Paola Ricci

Partner, Ares Life Sciences
Switzerland

Eric Emmanuel Schmitt

Dramatist, novelist, fiction writer,
film director and philosopher
Belgium

Bruno Sepodes PharmaD, MSc, PhD

Chair COMP, University of Lisbon
Portugal