Lauréats

EURORDIS a l’honneur de présenter ci-après les précédents lauréats des prix EURORDIS.

Cristian Silviu Busoi, Antoni Montserrat Moliner, Terkel Andersen, Michael Hubel, Jaroslaw Waligora

De gauche à droite:
lauréat du “Policy Maker Award 2016”, Cristian Silviu Busoi,
lauréat du “Leadership Award 2016”, Antoni Montserrat Moliner,
Terkel Andersen (Président EURORDIS),
colauréats du “Leadership Award 2016”: Michael Hubel, Jaroslaw Waligora

European Rare Disease Leadership Award

2016 Antoni Montserrat Moliner, European Commission; Jaroslaw Waligora, European Commission and Michael Hubel, European Commission
2015 Professor Josep Torrent-Farnell
2014 Jointly awarded to three leaders: Paola Testori Coggi, Director General for Health and Consumer Protection at the European Commission; Professor Guido Rasi, Executive Director of the European Medicines Agency (EMA); Luca Pani, Director General of the Italian Medicines’ Agency (AIFA)
2013 Ruxandra Draghia-Akli, MD, PhD
2012 Kerstin Westermark, MD, PhD

Policy Maker Award

2016 Cristian Silviu Busoi, MEP
2015 MEP Glenis Willmott
2014 Antonyia Parvanova, MEP
2013 MEP Françoise Grossetête
2012 Commissioner Androulla Vassiliou, JD

 

EURORDIS Volunteer Award

Tsveta Schyns-Liharska and Terkel Andersen (President EURORDIS)

Tsveta Schyns-Liharska et Terkel Andersen (Président EURORDIS)

2016 Tsveta Schyns-Liharska
2015 Rosa Sanchez de Vega
2014 Lise Murphy
2013 Lesley Greene
2012 Michele Lipucci Di Paola, PhD

 

Scientific Award

Prof. Dr. Peter N Robinson, Institute for Medical Genetics, Universitatsklinikum Charité, Germany

Prof. Dr. Peter N Robinson

2016 Prof. Dr. Peter N Robinson, Institute for Medical Genetics, Universitatsklinikum Charité, Germany
2015 Professor Kate Bushby
2014 Professor Hans-Hilger Ropers, Director at the Max-Planck-Institute for Molecular Genetics, Berlin
2013 Ségolène Aymé, MD
2012 San Raffaele Telethon Institute for Gene Therapy, Italy and Hôpital Necker – Enfants Malades, France

 

Patient Organisation Award

UNIQUE- The Rare Chromosome Disorder Support Group, UK

UNIQUE- The Rare Chromosome Disorder Support Group, UK

2016 UNIQUE- The Rare Chromosome Disorder Support Group, UK
2015 Children with SMA, Ukraine
2014 Allianz Chronischer Seltener Erkrankungen (ACHSE)
2013 Alström Syndrome UK
2012 French Muscular Dystrophy Association (AFM – Téléthon)

 

Company Award

Actelion, Switzerland

Actelion, Suisse

2016 Actelion, Switzerland
2015  Pfizer
2014 Orphan Europe – Sobi
2013 Celgene Corporation – Prosensa – Genzyme, a Sanofi Company
2012 CSL Behring – Sigma-Tau Pharmaceuticals – Shire

 

Media Award

2016 France Télévisions – AFM Téléthon
2015 Peter O’Donnell, European Voice
2014 Rick Guidotti, Positive Exposure
2013 Andrew Jack, Financial Times
2012 BBC

 

Lifetime Achievement Award

Renza Barbon Galuppi

Renza Barbon Galuppi

2016 Renza Barbon Galuppi, Italy
2015 Abbey Meyers
2014 Marlene Haffner, MD, MPH
2013 Eva Luise Köhler, Former First Lady of Germany