Awardees

Who are this year’s winners? See the recording of Awards Ceremony on eurordis.org/tv

Winners 2017

From left to right: Yann Le Cam (CEO EURORDIS); Anders Olauson (Lifetime Achievement Award); Julian Isla (Patient Organisation Award); Lucia Monaco (Scientist Award); Isabella Brambilla (Patient Organisation Award); Elizabeth Vroom (Volunteer Award); Terkel Andersen (President EURORDIS); Aldo Soligno (Media Award), Martin Andrews (Company Award) and Vytenis Andriukaitis (European Commissioner for Health and Food Safety) ©A. de Wilde

 

EURORDIS is pleased to present hereafter the awardees of the EURORDIS Awards.

Policy Maker Award

2017 Frédérique Ries, MEP

2016 Cristian Silviu Busoi, MEP
2015 MEP Glenis Willmott
2014 Antonyia Parvanova, MEP
2013 MEP Françoise Grossetête
2012 Commissioner Androulla Vassiliou, JD

European Rare Disease Leadership Award

2016 Antoni Montserrat Moliner, European Commission; Jaroslaw Waligora, European Commission and Michael Hubel, European Commission
2015 Professor Josep Torrent-Farnell
2014 Jointly awarded to three leaders: Paola Testori Coggi, Director General for Health and Consumer Protection at the European Commission; Professor Guido Rasi, Executive Director of the European Medicines Agency (EMA); Luca Pani, Director General of the Italian Medicines’ Agency (AIFA)
2013 Ruxandra Draghia-Akli, MD, PhD
2012 Kerstin Westermark, MD, PhD

 

EURORDIS Volunteer Award

2017 Elizabeth Vroom

2016 Tsveta Schyns-Liharska
2015 Rosa Sanchez de Vega
2014 Lise Murphy
2013 Lesley Greene
2012 Michele Lipucci Di Paola, PhD

 

Scientific Award

2017 Lucia Monaco, Chief Scientific Officer, Fondazione Telethon

2016 Prof. Dr. Peter N Robinson, Institute for Medical Genetics, Universitatsklinikum Charité, Germany
2015 Professor Kate Bushby
2014 Professor Hans-Hilger Ropers, Director at the Max-Planck-Institute for Molecular Genetics, Berlin
2013 Ségolène Aymé, MD
2012 San Raffaele Telethon Institute for Gene Therapy, Italy and Hôpital Necker – Enfants Malades, France

 

Patient Organisation Award

2017 Dravet Syndrome European Federation

2016 UNIQUE- The Rare Chromosome Disorder Support Group, UK
2015 Children with SMA, Ukraine
2014 Allianz Chronischer Seltener Erkrankungen (ACHSE)
2013 Alström Syndrome UK
2012 French Muscular Dystrophy Association (AFM – Téléthon)

Company Award

2017 GSK (GlaxoSmithKline) – Rare Diseases

2016 Actelion, Switzerland
2015  Pfizer
2014 Orphan Europe – Sobi
2013 Celgene Corporation – Prosensa – Genzyme, a Sanofi Company
2012 CSL Behring – Sigma-Tau Pharmaceuticals – Shire

 

Media Award

2017 Aldo Soligno

2016 France Télévisions – AFM Téléthon
2015 Peter O’Donnell, European Voice
2014 Rick Guidotti, Positive Exposure
2013 Andrew Jack, Financial Times
2012 BBC

 

Lifetime Achievement Award

2017 Anders Olauson

2016 Renza Barbon Galuppi, Italy
2015 Abbey Meyers
2014 Marlene Haffner, MD, MPH
2013 Eva Luise Köhler, Former First Lady of Germany